Long COVID Resources

Purpose

These sites may include useful links or pointers to information created and maintained by other public and private organizations and individuals' blogs. CDC provides these links and pointers solely for our users' information and convenience. CDC does not endorse any specific support group or organization below.

Support Groups

Long COVID Alliance
Long COVID Kids
Long Covid Families – Support for caregivers, children, and individuals
Support & Connect – Bateman Horne Center
Patient Led Research Collaborative for Long COVID
COVID-19 Longhauler Advocacy Project

For parents or caregivers of children with Long COVID

Department of Education's Resource to Support Children, Students, Educators, Schools, Service Providers, and Families
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Supporting Children With Long COVID to Manage Their Energy
Long-Haul COVID-19 in Children and Teens

Support for caregivers

Managing Stress
How Right Now
Mental health services, tips coping with stress and difficult emotions
Caring for Yourself When Caring for Another

Disability

Long-Term Health Effects of COVID-19: Disability and Function Following SARS-CoV-2 Infection | The National Academies Press
Developing SSI/SSDI Applications for Individuals with Long COVID
Guidance on "Long COVID" as a Disability Under the ADA
What You Should Know About COVID-19 and the ADA, the Rehabilitation Act, and Other EEO Laws
Long COVID: A Guide for Health Professionals on Providing Medical Evidence for Social Security Disability Claim
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Additional Resources

A Long COVID Definition: A Chronic, Systemic Disease State with Profound Consequences | The National Academies Press
RECOVER (recovercovid.org)
Long COVID
As part of an ongoing partnership with the Census Bureau, the National Center for Health Statistics...
Healthcare appointment checklist
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Healthcare appointment checklist - Spanish
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